Limb Difference

Moments of Sweetness while raising a child with a limb difference

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All parents experience moments of sweetness while raising their children. As a new parent of a child with a limb difference, you may wonder what moments of sweetness you may experience that specifically relate to raising your child. Here are some that parents have shared over the years.

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Choosing High Quality Picture Books for Your Child

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There are many wonderful books for children written about characters with limb differences! As a parent, you want to choose books that align with and reinforce your values and steer clear of books that teach messages that you prefer to avoid.

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Highlights on Hands To Love Hand Camp

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Highlights of the 2023 Hands To Love Hand Camp weekend in Starke, Florida!

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Letter from a Parent to their Child with a Limb Difference

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Overhearing a parent talking to their child with a limb difference inspired me to think about what I would have liked to have heard as a child. Here it is in letter format.

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Other Voices: LFP Weekend 2023 Reflections

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Many adults who attended LFP 2023 Weekend shared reflections on social media about their experiences. Here are two, one from an occupational therapist and the other from an athete, both of whom have upper limb differences!

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Overuse Syndrome

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The human body is capable of unbelievable feats of strength, both for “typical” people and for children and adults with limb differences. But the human body also is designed to be symmetrical. While human beings naturally develop a dominant side of the body, cumulative strain occurs when the body is used asymmetrically over many years due to missing or non-functional parts. Learn how to reduce the effects of overuse syndrome.

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Jumping rope at LFP 2023

Lucky Fin Weekend Reflections 2023

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This past weekend, I participated in the Lucky Fin Project weekend for people affected by upper limb differences. As a pediatric occupational therapist with a congenital hand difference, I promoted the information and resources on my website and demonstrated the EazyHold adaptive silicone grip assist.

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Balanced and Nuanced Medical Advice

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Medical providers can offer much more than rosy or doom-and-gloom predictions when they consult with families of babies with congenital hand/arm differences.

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Questions for the Physician/Specialist

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Here are some questions that you may want to ask any specialist whom you consult about your child’s hand/arm development

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Letter to my Parents, Teachers, and Coaches from my Younger Self

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Had I been able to articulate what support I needed as a child, here is what I would have requested of the adults in my life

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