Life Stages

What NOT to say when your child is sad about their limb difference

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Many of us were conditioned to respond to children when they are sad in ways that aren’t the best for them. Some of the following responses are less helpful in the moment than using reflective listening and offering empathy. Many of us heard these from our families of origin. Knowing why they can be harmful can empower us.

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Preparing yourself for when your child feels SAD about their limb difference

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On social media, parents often share about the hard moments when their children feel sadness about their limb difference for the first time. Before offering suggestions for supporting children during these difficult moments, I wanted to examine this situation from the parents’ perspective. All children experience sadness about aspects of their life, but this situation is a little different. Let’s explore it!

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When your child realizes they have a limb difference

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This post initially was inspired by parents sharing about the moments that their children discovered or said something about their limb difference for the first time. I hope that this post will help parents anticipate what might be coming as well as support your child!

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Choosing High Quality Picture Books for Your Child

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There are many wonderful books for children written about characters with limb differences! As a parent, you want to choose books that align with and reinforce your values and steer clear of books that teach messages that you prefer to avoid.

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Teenage Years

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Guest column: Middle School and High School & Learning Life Skills, by Laura Tofinchio, Shelton, CT

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School Age

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Guest Column: From Daycare to Elementary School, by Laura Tofinchio, Shelton, CT

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Early Years

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So much happens from birth to thrugh preschool! In this section, we will address your child’s adjustment to having a hand/arm difference, your child’s functional capacities, and some important additional considerations

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Pregnancy and Birth

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Please know that you are NOT alone – in fact, you are in great company! You may be feeling a range of emotions, have a ton of questions, and need support. When you are ready, let’s delve into the issues you may be facing and explore next steps.

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Now What?

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You have told some close friends and family about your expected baby’s condition; you have cried and laughed and wondered, “How could this have happened?” Here are some suggestions that should bring you and your family some well-earned peace of mind.

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I’m Having a Baby With What?

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You had an image of playing with your baby, feeding her, kissing her, bathing her, playing peek-a-boo with her, brushing her soft hair… In those images your baby was “perfect” – two big beautiful eyes, two ears, two arms, two legs, ten fingers, and ten toes. However, and whenever, you found out – whether during pregnancy or at birth – what an enormous shock it must be/have been to learn that your baby would arrive different from how you had imagined. This post addresses many of the difficult issues that you may be experiencing during this challenging time.

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