Limb Difference
In this blog, we apply Jancee Dunn’s genius empathetic parenting strategy of asking your child when they’re sad about their limb difference: “Do you want to be hugged, heard, or helped?” (NYTimes column 4/23)
A highlight of Lucky Fin Project Weekend 2024 was talking to almost 100 parents about the prevalence of overuse syndrome in upper limb different (ULD) adults and demonstrating strategies to parents to lessen the risk for our beautiful children as they grow. But whatever I contributed to the weekend, I received so much more back as I connected with families and met beautiful, creative, and energetic little ones!
I was thrilled to participate in the 3rd annual Upper Limb Difference Day as a panelist. The event, a collaboration between Beautifully Made Community and the Orthopedic Department at Boston Childrens Hospital, took place at Lookout Farm in Natick, Massachusetts on a gorgeous afternoon! Speaking as a panelist about technology adaptations and overuse syndrome awareness…
Hands to Love Hand Camp 2024 offered me the opportunity to feel belongingness and connection while merging my personal experiences as an adult with an upper limb difference with my professional experiences as an occupational therapist. I am so grateful for this yearly gathering that celebrates upper limb differences in a warm and supportive environment!
On a recent retreat, I openly shared my experiences growing up with a visible physical difference and how it affected my sense of belonging. This openness about my hand allowed me to preempt questions, express my desire to be seen both as having – but not defined by – my disability, and ultimately feel more relaxed and connected. The positive responses from others showed how being vulnerable can foster trust and confidence.
We delve into the factors that affect typing and accessing a computer for children and young adults with hand/arm differences, including strain to the “dominant” hand as well as incorporating the “affected” hand or arm. While ergonomics is important for everyone who types, it is even more important for children with hand/arm differences
We delve into messaging that can be detrimental to the development of a child with a hand/arm/limb difference from the child’s perspective. People who did not grow up with a limb difference may not realize how this messaging can affect a child and what the alternatives are.
Children need to be taught how to ask questions & connect with people who have visible differences and disabilities. We explore the two different kinds of questions and statements that people often ask and how they affect the listener.
Many of us were conditioned to respond to children when they are sad in ways that aren’t the best for them. Some of the following responses are less helpful in the moment than using reflective listening and offering empathy. Many of us heard these from our families of origin. Knowing why they can be harmful can empower us.
On social media, parents often share about the hard moments when their children feel sadness about their limb difference for the first time. Before offering suggestions for supporting children during these difficult moments, I wanted to examine this situation from the parents’ perspective. All children experience sadness about aspects of their life, but this situation is a little different. Let’s explore it!