Limb Difference

Hands to Love Hand Camp – April 12-14, 2024

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Hands to Love Hand Camp 2024 offered me the opportunity to feel belongingness and connection while merging my personal experiences as an adult with an upper limb difference with my professional experiences as an occupational therapist. I am so grateful for this yearly gathering that celebrates upper limb differences in a warm and supportive environment!

Embracing Vulnerability: Journeying Toward Self-Acceptance

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On a recent retreat, I openly shared my experiences growing up with a visible physical difference and how it affected my sense of belonging. This openness about my hand allowed me to preempt questions, express my desire to be seen both as having – but not defined by – my disability, and ultimately feel more relaxed and connected. The positive responses from others showed how being vulnerable can foster trust and confidence.

Typing/Keyboarding with an Upper Limb Difference (or two!)

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We delve into the factors that affect typing and accessing a computer for children and young adults with hand/arm differences, including strain to the “dominant” hand as well as incorporating the “affected” hand or arm. While ergonomics is important for everyone who types, it is even more important for children with hand/arm differences

The Overachiever Trap

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We delve into messaging that can be detrimental to the development of a child with a hand/arm/limb difference from the child’s perspective. People who did not grow up with a limb difference may not realize how this messaging can affect a child and what the alternatives are.

Teaching Children How to Ask About Limb Differences

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Children need to be taught how to ask questions & connect with people who have visible differences and disabilities. We explore the two different kinds of questions and statements that people often ask and how they affect the listener.

What NOT to say when your child feels SAD about their limb difference

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Many of us were conditioned to respond to children when they are sad in ways that aren’t the best for them. Some of the following responses are less helpful in the moment than using reflective listening and offering empathy. Many of us heard these from our families of origin. Knowing why they can be harmful can empower us.

Preparing yourself for when your child feels SAD about their limb difference

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On social media, parents often share about the hard moments when their children feel sadness about their limb difference for the first time. Before offering suggestions for supporting children during these difficult moments, I wanted to examine this situation from the parents’ perspective. All children experience sadness about aspects of their life, but this situation is a little different. Let’s explore it!

When your child realizes they have a limb difference

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What happens when your child starts to notice their upper or lower limb difference? This post offers insight and practical tips to help you support your child with warmth and confidence.

Moments of Sweetness while Raising a Child with a Limb Difference

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All parents experience moments of sweetness while raising their children. As a new parent of a child with a limb difference, you may wonder what moments of sweetness you may experience that specifically relate to raising your child. Here are some that parents have shared over the years.

Choosing High Quality Picture Books for Your Child

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There are many wonderful books for children written about characters with limb differences! As a parent, you want to choose books that align with and reinforce your values and steer clear of books that teach messages that you prefer to avoid.