Reflections
A highlight of Lucky Fin Project Weekend 2024 was talking to almost 100 parents about the prevalence of overuse syndrome in upper limb different (ULD) adults and demonstrating strategies to parents to lessen the risk for our beautiful children as they grow. But whatever I contributed to the weekend, I received so much more back as I connected with families and met beautiful, creative, and energetic little ones!
I was thrilled to participate in the 3rd annual Upper Limb Difference Day as a panelist. The event, a collaboration between Beautifully Made Community and the Orthopedic Department at Boston Childrens Hospital, took place at Lookout Farm in Natick, Massachusetts on a gorgeous afternoon! Speaking as a panelist about technology adaptations and overuse syndrome awareness…
Hands to Love Hand Camp 2024 offered me the opportunity to feel belongingness and connection while merging my personal experiences as an adult with an upper limb difference with my professional experiences as an occupational therapist. I am so grateful for this yearly gathering that celebrates upper limb differences in a warm and supportive environment!
On a recent retreat, I openly shared my experiences growing up with a visible physical difference and how it affected my sense of belonging. This openness about my hand allowed me to preempt questions, express my desire to be seen both as having – but not defined by – my disability, and ultimately feel more relaxed and connected. The positive responses from others showed how being vulnerable can foster trust and confidence.
On social media, parents often share about the hard moments when their children feel sadness about their limb difference for the first time. Before offering suggestions for supporting children during these difficult moments, I wanted to examine this situation from the parents’ perspective. All children experience sadness about aspects of their life, but this situation is a little different. Let’s explore it!
All parents experience moments of sweetness while raising their children. As a new parent of a child with a limb difference, you may wonder what moments of sweetness you may experience that specifically relate to raising your child. Here are some that parents have shared over the years.
Highlights of the 2023 Hands To Love Hand Camp weekend in Starke, Florida!
Many adults who attended LFP 2023 Weekend shared reflections on social media about their experiences. Here are two, one from an occupational therapist and the other from an athete, both of whom have upper limb differences!
This past weekend, I participated in the Lucky Fin Project weekend for people affected by upper limb differences. As a pediatric occupational therapist with a congenital hand difference, I promoted the information and resources on my website and demonstrated the EazyHold adaptive silicone grip assist.
Had I been able to articulate what support I needed as a child, here is what I would have requested of the adults in my life
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