One of the most important things parents and teens need to understand is this:

There is no single, standardized experience for learning to drive with an upper limb difference.

Driving instructors, adaptive driving programs, and Bureau of Motor Vehicles (BMV) staff often approach disability very differently. What one family is told may be completely different from what another family hears, sometimes within the same state.

This post is meant to help families understand the nuance, the long-term implications, and the questions worth asking before making decisions that may affect a teen’s driving future.

Upper limb differences and driving: the big picture
Adaptive driving equipment: helpful tool or long-term commitment?
Steering knobs and license restrictions
State laws vary — sometimes significantly
Talk directly to the BMV or DMV before the road test
The takeaway
Explore more resources

Upper limb differences and driving: the big picture

Teens and adults with shortened, absent, or anatomically different upper limbs drive successfully every day. There are many ways to operate a vehicle safely depending on:

• Which limb is affected (right, left, bilateral)
• Level of limb difference
• Range of motion, strength, and endurance
• Compensation patterns already in use
• The type of vehicle
• Whether adaptive equipment is used

Driving ability is not binary (can vs. can’t). It exists on a spectrum, and most people with upper limb differences fall somewhere in the middle—capable drivers who may or may not need adaptations.

Adaptive driving equipment: helpful tool or long-term commitment?

Adaptive equipment, such as steering knobs, spinner knobs, or modified controls, can be incredibly useful when truly needed. However, families are often not told that using certain devices during a driving test can result in a permanent license restriction.

Steering knobs and license restrictions

A common example is the steering knob:

• A teen may be encouraged (or required) to use a steering knob during the road test
• The BMV may then issue a license stating that the driver must use that adaptive device at all times
• That restriction can follow the driver for years—or indefinitely—unless formally reassessed

What families often don’t realize:
The restriction is not automatically removed if the driver no longer needs the device. In many states, removing a restriction requires additional documentation, medical clearance, a formal reassessment, or even a repeat driving test. For some drivers, that process is straightforward; for others, it can be time-consuming, costly, or discouraging enough that the restriction simply stays in place.

This doesn’t mean adaptive equipment should be avoided. It does mean that families deserve to understand the long-term implications before a device is introduced during a road test.

Important questions to ask before using adaptive equipment during a driving test:

• Is this device required for safety, or is it being suggested out of caution or unfamiliarity?
• If my teen uses this during the test, will it result in a license restriction?
• If so, what is the process for removing that restriction later?
• Who makes that determination—the examiner, the BMV, or a medical professional?

State laws vary — sometimes significantly

Driving regulations related to adaptive equipment are state-specific, and even within a state, interpretation can vary by examiner or office.

One helpful resource is suicideknob.net, which provides a state-by-state overview of laws related to steering (spinner) knobs and other devices. While it’s not an official government site, it can be a useful starting point for understanding what may be permitted in your state and what questions to ask next.

Historically, steering knobs were often restricted to drivers with documented disabilities. Today, in many states, any driver may legally use a spinner knob, regardless of disability status. However, some states still have specific requirements, and others allow them broadly but attach conditions when they’re used during a licensing exam.

This is why it’s so important not to rely solely on what one instructor, therapist, or examiner says.

Talk directly to the BMV or DMV before the road test

Before scheduling a driving test, families should consider contacting someone knowledgeable at their local BMV or DMV, ideally someone who works with medical reviews or adaptive driving cases.

Helpful questions include:

• If a steering knob is used during the test, will that result in a restriction?
• Is there flexibility in how the test is conducted?
• Can a teen test without adaptive equipment if they typically drive without it?
• What documentation is required if adaptations are used or removed later?

Having these conversations ahead of time can prevent surprises and give families more control over the decision-making process.

The takeaway

Adaptive equipment can be empowering, protective, and sometimes essential, but it should be introduced intentionally, not automatically.

Teens with upper limb differences are not a monolith. Some will benefit from adaptive tools long-term; others may use them temporarily or not at all. The goal is to make informed choices that support safety without unnecessarily limiting future options, not to prove independence or avoid supports.

Driving with an upper limb difference is absolutely possible. The path there just requires better information, better questions, and a system that recognizes ability exists on a spectrum.

Frequently asked questions

Can you drive with one hand?
Yes, many people drive safely with one hand while many use compensatory strategies or adaptive equipment when needed.

Do you have to use a steering knob if you have a limb difference?
No. Some drivers choose to use one, but using it during a driving test will result in a license restriction. In most states, you should be able to test without the steering knob (so it isn’t a license restriction) and then use it while driving.

What is a driving evaluation with an occupational therapist?
It’s a specialized assessment that evaluates your physical and cognitive ability to drive and helps determine if adaptive equipment is needed.

Explore more resources

👉 Check out the Free Handouts
👉 Learn about Seeing the whole child with a limb difference: celebrating strengths & supporting struggles
👉 Read Winter Care for Partial Arms and Hands: Skin, Circulation, and Warmth

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Driving With an Upper Limb Difference: What Families and Teens Need to Know appeared first on On The Other Hand.

Each resource draws from both lived experience and clinical practice, offering practical language, guidance, and perspective that parents often don’t have access to on their own.

You are welcome to explore, download, and use whatever feels helpful for your child and your family.

You can browse by topic below and choose what feels most relevant right now.

Understanding physical health & overuse syndrome
Talking about limb difference
Emotional development & identity
Representation & play
Social challenges & bullying
Reflections & connection
Practical strategies & adaptations

Understanding physical health & overuse syndrome 

👉 Five Habits to Reduce Overuse Risk for Children with Upper Limb Differences
Simple daily habits that help protect your child’s body and reduce long-term strain.

👉 How to Talk to Your Child About Overuse Syndrome
Supportive, age-appropriate ways to introduce the idea of body awareness and prevention.

👉 Understanding Upper Limb Difference Overuse Syndrome
A clear overview of what overuse is, why it happens, and what to watch for over time.

👉 How to Think Like an OT
A practical way to help your child notice strain, anticipate fatigue, and tune into their body during everyday activities.

Talking about limb difference

👉 Teaching Children How to Ask About Limb Differences

Simple language and strategies to help children navigate curiosity in social situations.

👉 For strategies to help your child tune into their body during activities, see How to Think Like an OT.

Emotional development & identity

👉 When Your Child Realizes They Have a Limb Difference
What this moment can look like and how to respond with support and steadiness.

👉 Preparing Yourself When Your Child Feels Sad
How to ground yourself so you can show up calmly and supportively during emotional moments.

👉 What Not to Say When Your Child Feels Sad
Common responses that miss the mark—and what helps children feel truly understood instead.

Representation & play

👉 Limb Different Toys and Dolls

A curated look at toys that reflect limb differences and support identity and belonging through play.

Social challenges & bullying

👉 Supporting Your Child Through Social Challenges

A practical guide to recognizing, responding to, and supporting your child through difficult peer interactions.

Reflections & connection

👉 Mother’s Day Letter to My Mother
A personal reflection on parenting, perspective, and what support can look like over time.

👉 Letter from a Parent to Their Child with a Limb Difference
A meaningful way to express love, understanding, and long-term perspective.

Practical strategies & adaptations

👉 Typing and Keyboarding Options for Upper Limb Difference

An overview of tools and approaches to support efficient and comfortable computer use.

Take what is helpful, and leave what is not. Each child is different, and these tools are meant to support — not replace — your understanding of your own child.

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Start Here: Free Printable Handouts About Upper Limb Differences appeared first on On The Other Hand.

This section focuses on the practical, day-to-day aspects of supporting children with upper limb differences so they can move through the world with comfort, confidence, and capability.

The goal is not just participation, but sustainable participation — helping children do what they love while also protecting their long-term physical health.

Here you will find guidance on topics such as:

• Keeping hands and arms comfortable in different environments
• Building strength and endurance
• Supporting movement, exercise, and physical participation
• Adapting everyday routines in simple, effective ways

Each child is different. Take what is helpful, adapt what you need, and let your child’s interests and experiences guide you.

Quick links

👉 Winter Care for Partial Arms and Hands: Skin, Circulation, and Warmth
👉 Upper Body Strengthening Tools for Upper Limb Difference
👉 Exercise: Building a balanced body for children with hand & arm differences
👉 Life Stages

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Start Here: Everyday Living Tips for Children with Upper Limb Differences appeared first on On The Other Hand.

Raising a child with an upper limb difference brings many questions. Parents often want clear information, practical guidance, and reassurance that they are not alone.

This page gathers articles, guides, and tools to support families at different stages of the journey. Some resources focus on early questions after diagnosis. Others explore therapy, daily life, and long term well being.

You do not need to read everything at once. Start with what feels most helpful right now and come back when new questions arise.

Parenting series

This series offers thoughtful guidance for parents raising children with upper limb differences. Each post explores one aspect of the journey, including emotional support, physical health, advocacy, and long term well being.

The goal is not to provide a checklist or a perfect formula for parenting. Instead, these posts share ideas that can help families build strong, resilient foundations over time.

👉 Read the Raising a Child with an Upper Limb Difference parenting series

Understanding limb difference & limb loss language

Words matter. The language used to describe limb differences has changed over time and can vary across communities.

This article explains common terms, why some language feels respectful while other language may not, and how families can talk about limb differences in ways that support dignity and understanding.

👉 Read Understanding Limb Difference Language & Terminology

Navigating medical decisions

Interacting with medical professionals can be an important — but sometimes confusing —part of raising a child with an upper limb difference.

Families are often asked to make decisions without always having clear guidance about what questions to ask, what options to consider, or how to interpret different recommendations.

This section is designed to help you feel more prepared and more confident when navigating medical care. It includes guidance on working with physicians and specialists, understanding the role of occupational therapy, and thinking through decisions related to treatment, therapy, and long term care. Many of these insights reflect both clinical experience and lived experience, offering perspective that families are not typically given in medical settings.

The goal is to help you ask thoughtful questions, understand your options, and advocate for your child in a way that feels informed and grounded, not to tell you what decisions to make.

👉 Delve into What Is Occupational Therapy?
👉 Explore Balanced and Nuanced Medical Advice
👉 Read Questions for the Physician or Specialist

Resource directory

Families often ask where to find trusted organizations, support groups, prosthetic resources, and educational materials.

The directory gathers links to organizations and tools that support people with limb differences and the families who love them.

👉 Explore the Resource Directory

Tools for daily life

Children with upper limb differences often find their own ways of doing things. At times, simple tools or adaptations can make everyday activities easier, more comfortable, or more efficient.

This section highlights practical options that can support participation at home, in school, and during play. These resources are not about “fixing” differences, but about expanding access and reducing unnecessary frustration.

👉 Learn about Limb different toys & dolls matter – here’s why
👉 Explore Typing/Keyboarding with an Upper Limb Difference (or two!)

A note for parents

Every child with a limb difference is unique. Families make different choices about therapy, prosthetics, sports, school support, and many other aspects of life.

The resources here are meant to inform and support you as you make decisions that fit your child and your family.

You do not have to figure everything out all at once.

Explore more resources

👉 Check out the Free Handouts
👉 Learn about Seeing the whole child with a limb difference: celebrating strengths & supporting struggles
👉 Read Winter Care for Partial Arms and Hands: Skin, Circulation, and Warmth

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Start Here: Resources for Families Raising Children with Upper Limb Differences appeared first on On The Other Hand.

Raising a child with an upper limb difference brings joy, questions, and moments that few people prepare parents for.

Over time, families learn to navigate medical appointments, school conversations, social situations, and decisions about therapy or prosthetics. Along the way, parents also carry emotional work that is not always visible to others.

This parenting series offers practical and compassionate guidance for families raising children with upper limb differences.

The ideas shared here come from lived experience growing up with a hand difference, decades of work as a pediatric occupational therapist, and long involvement in the limb difference community.

The goal is not to provide a checklist or a perfect formula for parenting. Every child and every family is different.

Instead, these posts offer thoughtful suggestions that can help parents support their child’s physical development, emotional well being, and long term resilience.

You may find that some ideas resonate right away. Others may become more helpful later as your child grows.

Take what fits your family and leave the rest.

Parenting tips

This series will grow over time as new topics are added.

Tip #1: Take Care of Yourself

Raising a child with an upper limb difference is a long journey that requires energy, patience, and support. This first post focuses on sustainable parenting and why caring for yourself is an important part of caring for your child.

👉 Read Tip #1: Take Care of Yourself First (Yes, Really You)

Tip #2: Find Your People — Support for Families Raising a Child with an Upper Limb Difference

Parents don’t have to navigate this journey alone. This second post explores how families can find meaningful connection, build supportive community, and navigate relationships with clarity and care.

👉 Read Tip #2: Find Your People — Support for Families Raising a Child with an Upper Limb Difference

A note for parents

Many parents feel pressure to do everything perfectly. In reality, parenting a child with a physical difference is a long learning process.

You do not have to figure everything out at once.

This series is meant to support families as they grow alongside their children.

Explore more resources

👉 Access the Free Handouts
👉 Explore Typing/Keyboarding with an Upper Limb Difference (or two!)
👉 Find out about Limb different toys & dolls
👉 Learn “How to think like an OT”

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Start Here: Parenting Series Landing Page appeared first on On The Other Hand.

Parents and caregivers of children with upper limb differences often say that this is one of the hardest truths to hear: You matter just as much as your child.

It’s tempting to dive all in: to become the researcher, advocate, expert, appointment scheduler, and your family’s emotional glue. You want to give your child, family, everything. 

But burnout is real, and nobody thrives when the parent is exhausted and overwhelmed.

Let’s reframe this: Taking care of yourself is part of caring for your child.

Your feelings are valid
Find community
Pace yourself
Choose the supports that fit your life
Honest conversations to have now
Care for your whole self
Final thought
Want more support?

Here’s what that might look like:

Your feelings are valid

They’re all legitimate: guilt, anxiety, fear, sadness, joy, hope, amazement. Having a safe place to process your feelings isn’t selfish. Needing support also doesn’t mean you don’t love your child. Quite the opposite: sharing with a therapist, counselor, or trusted friend can help your child. In fact, research shows that children born with limb differences are harmed by parents’ depression and anxiety (Martens, et al., 2023). So getting help for yourself can help your child.

Find community

You don’t have to do this alone. Whether it’s an online group, a limb difference family weekend, or just one parent who “gets it,” finding someone to walk beside you makes a huge difference. Connecting with a family whose child shares your child’s limb difference (“hand twin” or “limb twin”) can be helpful both for you and your child.

Pace yourself

You don’t have to know everything all at once. Learn a little at a time, staying just a step ahead of what’s coming next. This is a lifelong journey, not a sprint.

Choose the supports that fit your life

Every family builds support in different ways. Some parents have strong extended family networks. Others rely more on community, friends, or professional support.

It can be helpful to think about support as a menu rather than a single solution. Different families choose different combinations depending on their needs and resources.

Examples of support might include:

• assistance from family or friends
• journaling, reflection, or meditation
• movement, sleep, and nutrition that support your own wellbeing
• therapy or counseling

Honest conversations to have now

Another important form of support involves honest conversations about how responsibilities are shared.

For example, proactively discussing questions with the important people in your life can lessen stress:

• Who attends medical appointments?
• Who manages scheduling and logistics?
• Who handles grocery shopping or meals?
• Who organizes school or social activities?

These conversations can help distribute both the physical and emotional load of parenting.

Care for your whole self

It’s okay to prioritize rest, nourishment, exercise, friendships, and joy. It’s also okay, and often even necessary, to say no to extra commitments.

Some permissions you may need: you don’t have to

• get it all right or do it all perfectly
• be on every board
• attend every event
• carry everything alone

Final thought

Your child needs a present parent, not a perfect one. The fact that you are taking the time to read this already says so much about how you’re doing a beautiful job.

Want more support?

👉 Follow the rest of the Raising a Child with an Upper Limb Difference parenting series on Instagram and read the full series here
👉 Read Understanding Limb Difference Language & Terminology
👉 Access the Resource Directory
👉 Learn about Bullying Part 1: Understanding Exclusion and Social Systems
👉 Delve into Upper body strengthening tools for upper limb difference

Reference

Martens, S. A., Tuberty, S., & James, M. A. (2023). Self-concept development in children with limb differences: A scoping review. International Journal of Orthopaedic and Trauma Nursing, 49, Article 100997. https://doi.org/10.1016/j.ijotn.2023.100997

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Tip #1: Take Care of Yourself First (Yes, Really You) appeared first on On The Other Hand.

Find your people
Support for the whole family
What counts as community?
When support feels complicated
Not every group is the right fit
It’s okay to take breaks
Connection can take time
Final thought
Want more support?

Find your people

When your child is born with a limb difference or acquires one later in life, it can feel like your world has shifted. 

In many ways, it has. But you don’t have to figure it all out alone.

One of the most helpful things families share is the moment they connected with others who truly understood their experience. Maybe it was another parent, a mentor, a teen with a similar limb difference, or even a child who looked like their own.

Community can give hope and perspective. It can remind us that we are not alone, and that our experiences are real, shared, and survivable.

Support for the whole family

Supportive community can benefit more than the child with a limb difference. It can help parents, siblings, and even extended family feel less alone. It can give everyone a sense of belonging and a place to ask honest questions without judgment.

What counts as community?

• Online support groups like Facebook groups or forums
• In-person events or camps like Camp No Limits
• Family weekends like those hosted by Lucky Fin Project
• Social media, curated wisely, can offer connection and representation

You don’t have to attend every event or post online. But if you want support, it’s out there.
👉 Search the Resource Directory for organizations, camps, family weekends, and more!

When support feels complicated

Support can come from many places, including extended family, long-time friends, and new connections within the limb difference community.

Some families report feeling surprised that strangers in limb difference groups offer more understanding than family members or long-time friends. It may seem disappointing that people whom you previously thought were closest to you don’t share your perspective on your child’s limb difference or have different understandings of limb difference. Some may underestimate your child’s abilities, while others may respond with overprotection or uncertainty.

This can be difficult, especially when these perspectives come from relationships you cherished.

It’s okay to be thoughtful about the people and messages that influence your child and who you turn to for support.

Some families find it helpful to:

• limit certain conversations
• set gentle but clear boundaries
• seek out communities that better understand their child’s experience
• take breaks from relationships that feel draining

Not every group is the right fit

Some limb difference events are large and busy, while others are small and intimate. Some groups focus on advocacy, while others center social connections. Try what works for your family, and give yourself permission to leave what doesn’t.

It’s okay to take breaks

While connecting with others can be healing, it can also bring up deep feelings. You might feel tender after an event or overwhelmed by certain stories. This is all normal. You get to engage in ways that feel nourishing, not draining.

Connection can take time

Sometimes families attend an event or join a group expecting instant friendships. While that does happen for some people, it’s not the only way connection develops.

Many meaningful relationships grow slowly, through repeated events, small conversations, or simply recognizing familiar faces over time.

If you attend an event and don’t immediately feel a sense of belonging, that doesn’t mean the community isn’t there for you. Like any relationship, finding your people can take time.

It’s okay to explore at your own pace and allow those connections to develop naturally.

Final thought

Support doesn’t have to come from everyone. It can come from the people who are able to show up in ways that are helpful and respectful. Over time, many families build a circle of support that feels aligned with how they see their child and their future.

Finding supportive community doesn’t solve everything. But it can mean having people to turn to on the hard days and celebrate with on the good days.

Want more support?

👉 Follow the rest of the Raising a Child with an Upper Limb Difference parenting series on Instagram and read the full series here
👉 Access the Resource Directory
👉 Delve into Upper body strengthening tools for upper limb difference
👉 Explore Bullying Part 1: Understanding Exclusion and Social Systems
👉 Read Understanding Limb Difference Language & Terminology

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Tip #2: Find Your People — Support for Families Raising a Child with an Upper Limb Difference appeared first on On The Other Hand.

Introduction

This is where I post my writings about the parts of limb difference that are harder to quantify.

Not the clinical pieces, checklists, or “how-to” strategies, but the emotional undercurrents, emotional adaptations, and things children carry without always having language for their experiences.

Some of these posts are personal. Some are written from imagined perspectives. Some are grounded in professional insight. All of them explore what it means to grow up, parent, or live with a limb difference in a world that often assumes, “They’ll figure it out.”

If you’re new here, this page will help you find a place to start.

Holding the whole experience

Raising a child with an upper limb difference includes moments of deep joy, connection, and pride — as well as moments of frustration, sadness, and uncertainty.

Both can exist at the same time.

This section reflects the fuller picture of the experience, beyond what is often visible or shared publicly. It offers space to acknowledge the challenges while also recognizing the meaningful, often unexpected moments that shape the journey.

👉 Moments of Sweetness While Raising a Child with a Limb Difference
A gentle invitation to notice, remember, and hold onto the meaningful moments that bring connection, joy, and perspective over time.

👉 Seeing the Whole Child with a Limb Difference: Celebrating Strengths & Supporting Struggles
A reflection on moving beyond celebration alone to also acknowledge the real challenges children may face—and how both are essential to truly seeing the whole child.

Independence and support

If you’ve ever wondered whether you’re helping too much, or not enough, begin here. This series explores what independence can mask, why children don’t always ask for help, and how thoughtful anticipation supports long-term well-being.

👉 Part 1: The Hidden Costs of “They’ll Figure It Out”
👉 Part 2: Why Children With Limb Differences Often Don’t Ask for Help
👉 Part 3: Support, Independence, and the Space Between

Big feelings about limb difference

There is a multi-part series on children’s sadness and other big feelings, including reflections on:

• Why sadness shows up
• How parents often respond
• What children need in those moments
• How to prepare yourself emotionally when your child feels sad

(Some of these pieces live in Life Stages and Early Years because they are developmentally focused, but they connect deeply to the themes here.)

If you’re just starting with these issues, I recommend beginning with the post about preparing yourself. It reframes the moment before it arrives.

👉 Preparing yourself for when your child feels SAD about their limb difference
👉 What to say & do when your child feels sad about their limb difference

Bullying and social experiences

These reflections look beyond surface-level advice and explore the emotional and relational layers of bullying, especially when visible difference is involved.

If your child is experiencing peer challenges, or you are still carrying memories of your own, this may resonate.

👉 Bullying Part 1: Understanding Exclusion and Social Systems
👉 Bullying Part 2: Practical Guidance for Parents
👉 Bullying Part 3: Is It Bullying, Curiosity, or Something Else?

Identity and self-acceptance

I traced the emotional work of growing into comfort with difference, not as a single turning point, but as an ongoing process in:

👉 Embracing Vulnerability: Journeying Toward Self-Acceptance
👉 Seeing the Whole Child with a Limb Difference: Celebrating Strengths & Supporting Struggles

Letters and personal reflections

Sometimes it’s easier to understand something when it’s written as if it were spoken directly.

You’ll find several letters here, including:

👉 Mother’s Day Letter to my Mother
👉 Letter from a Parent to their Child with a Limb Difference
👉 Letter to my Parents, Teachers, and Coaches from my Younger Self
👉 Letter to my Younger Self

These pieces explore perspective, gratitude, grief, and love in a more intimate format.

My professional path

Here you’ll find my Graduate School Personal Statement.

It offers context for why I approach limb difference the way I do, where clinical training and lived experience intersect.

Community and event reflections

Connecting with others in the limb difference community can be a powerful and meaningful part of the journey — for both children and families.

These reflections share experiences from community events, gatherings, and conferences. While each event is unique, they offer a glimpse into the connection, learning, and sense of belonging that can emerge when families come together.

These posts may also help families consider whether community events feel like a good fit for their child or family.

👉 Lucky Fin Weekend Reflections 2023
👉 Lucky Fin Project Weekend – July 26–28, 2024
👉 Upper Limb Difference Day – June 15, 2024
👉 Hands to Love Hand Camp – April 12–14, 2024
👉 Highlights from Hands to Love Hand Camp
👉 Other Voices: LFP Weekend 2023 Reflections

What this section is (and isn’t)

If you are looking for meaning, perspective, and emotional nuance, you are in the right place. Reflections invite you to: 

• Slow down and notice what might otherwise be overlooked
• Consider what children experience internally, not just externally.

These writings won’t offer scripts for what to say in every moment. 

👉 If you are looking for practical strategies, visit Everyday Living.
👉 If you are looking for developmental guidance, visit Life Stages.

Wherever you begin, I hope something here helps you feel less alone, or helps you see your child more clearly.

Quick Links

Part 1: The Hidden Costs of “They’ll Figure It Out”
Part 2: Why Children With Limb Differences Often Don’t Ask for Help
Part 3: Support, Independence, and the Space Between
Bullying Part 1: Understanding Exclusion and Social Systems
Bullying Part 2: Practical Guidance for Parents
Preparing yourself for when your child feels SAD about their limb difference
What to say & do when your child feels sad about their limb difference
Mother’s Day Letter to my Mother
Letter from a Parent to their Child with a Limb Difference
Letter to my Parents, Teachers, and Coaches from my Younger Self
Letter to my Younger Self
Embracing Vulnerability: Journeying Toward Self-Acceptance
Graduate School Personal Statement
Everyday Living
Life Stages

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Start Here: Reflections about Growing Up and Living with an Upper Limb Difference appeared first on On The Other Hand.

Why partial arms and hands are more affected in winter
Preventing cracked skin
Handwashing and skin health
Managing cold extremities
Teaching children to protect their bodies
A lifelong skill
Learn more

Many families assume these issues are unavoidable, but fortunately they are not.

Why partial arms and hands are more affected in winter

ULD can be associated with circulation differences. Reduced circulation may contribute to colder extremities, slower skin healing, and increased sensitivity to temperature changes.

Body parts with reduced circulation often require proactive protection.

Preventing cracked skin

Consistent moisture is the foundation of winter skin care.

• Apply a thick lotion or ointment nightly to the partial arm or hand
• Use cotton gloves or soft sleeves overnight to seal in moisture
• Use liquid bandage to close painful skin cracks and reduce reopening during use

Many adults with ULD recall improvising solutions before products like liquid bandage existed. Thankfully, today we have safer and more effective options.

Handwashing and skin health

Winter often brings increased handwashing to prevent illness. While necessary, frequent washing strips natural oils from the skin.

A simple strategy helps: dermatologists recommend applying lotion immediately after washing while the skin is still slightly damp.

This single habit can significantly reduce cracking.

Managing cold extremities

Cold sensitivity is common in partial arms and hands.

Helpful strategies include:

• Microwavable stuffed animals or heat packs
• Warm layers that do not restrict movement
• Pre-warming before outdoor transitions

Always monitor temperature carefully, especially if sensation is reduced.

Teaching children to protect their bodies

As children grow, they may resist warm clothing for social reasons. This is a normal developmental stage.

Parents can help by explaining:

• The partial arm or hand may get colder faster
• It may be more vulnerable to frostbite
• Protection supports comfort and long-term health

When children understand the reason behind self care routines, their willingness to protect their skin may improve and they may even carry these habits into adulthood.

A lifelong skill

Winter care for upper limb differences is not just a childhood concern. Many adults report learning these strategies only after years of discomfort.

Early education supports comfort, participation, and long-term skin health across the lifespan.

Learn more

👉 How to Talk to Your Child about Limb Difference Overuse Syndrome
👉 Understanding Upper Limb Difference Overuse Syndrome
👉 The Overachiever Trap
👉 Typing/Keyboarding with an Upper Limb Difference (or two!)

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Winter Care for Partial Arms and Hands: Skin, Circulation, and Warmth appeared first on On The Other Hand.

Independence is not emotionally neutral
A classroom moment that stayed with me
The hidden work of “figuring it out”
Invisibility and unwanted attention
Praise can send mixed messages
What parents might notice in their own child
Why this matters
Keep reading

Parents of children with limb differences often hear a reassuring message early on: They’ll figure it out.

In many ways, that message is true. Many children with limb differences are creative, adaptable, and persistent. They often learn how to accomplish tasks in innovative ways that both surprise and impress the adults around them.

What is talked about far less is the internal work that can accompany that independence, especially when children are young and do not yet have the language or confidence to explain what they need.

I want to share a perspective that is not often named, but that many adults with limb differences recognize immediately once it is put into words.

Independence is not emotionally neutral

When we praise children for figuring things out on their own, we usually mean well. We want them to feel capable and confident in their bodies.

But we may not realize that independence can carry an emotional cost. This is especially true when support is not clearly available or expected.

A child can complete a task successfully and still feel unseen.
A child can adapt skillfully and still feel alone.
A child can look confident and still be quietly overwhelmed.

These experiences are not always obvious from the outside.

A classroom moment that stayed with me

One of my earliest memories comes from early childhood, around preschool or kindergarten. I was in a classroom with a group of other children working on an activity with scissors. The task required using both hands together.

As my peers got started, chatting and working easily, I felt a familiar sinking feeling. I knew I couldn’t do the activity the same way they could. I also noticed something else. No adult had come over to check in with me. No one had paused to consider how I might approach the task.

I remember looking around the room as my face flushed and my heart beat faster. I felt confused, frustrated, and invisible all at once. Watching the other children didn’t help. Their hands worked in ways mine could not.

At some point, I reached a decision point: do I ask for help, or try to manage this on my own?

Even at that young age, I was weighing choices internally:
Would the adults know how to help me?
Would asking draw attention to my hand?
Would it make things better, or just more uncomfortable?

So I did what I often did: I figured it out myself.

This scene repeated itself many times over the years, in classrooms, camps, and group activities. The details changed, but the internal experience stayed remarkably similar.

The hidden work of “figuring it out”

From the outside, a child who figures things out independently can look confident and capable. Adults may admire their persistence. They may even celebrate it.

From the inside, that same child may be doing a great deal of emotional work that no one sees.

They may be constantly scanning their environment to decide when it’s safe to ask for help.
They may be managing frustration while trying not to stand out.
They may be learning, very early on, that support is something you access only if you really have to.

Over time, this can shape how a child relates to others. It can teach them to stay quiet about their struggles. It can teach them that needing help is something to minimize.

Invisibility and unwanted attention

One of the hardest parts of growing up with a limb difference was the swing between feeling invisible and feeling conspicuous.

In group settings where I struggled, my needs often went unnoticed. In other moments, my hand sometimes became the focus of unwanted attention. Questions, stares, and comments reminded me that I was different, even when I wanted to blend in.

This combination made it harder to speak up. Staying quiet often felt safer than risking more attention or misunderstanding.

Many children with physical differences learn this balance instinctively. Its something they absorb through repeated experiences, not something they’re taught directly.

Praise can send mixed messages

I was often praised for being independent and resourceful. Adults would comment on how impressive it was that I figured things out on my own.

What I didn’t have words for at the time was how much effort that independence required, and how much I longed for someone to notice what I was managing.

Over time, I internalized the idea that doing things alone was expected. I also absorbed a fear that needing help might mean I was failing at something I was supposed to handle.

This is not because adults did anything intentionally wrong. It is because children interpret patterns long before they can explain them.

👉 Learn more about the The Overachiever Trap.

What parents might notice in their own child

Children who carry this kind of internal load often look like they are doing well.

They may rarely complain.
They may insist on doing things themselves.
They may appear mature or self-sufficient for their age.

They may even refuse offers of help.

These traits often earn praise, and many of them are true strengths. At the same time, they can mask moments when a child could benefit from support, collaboration, or simply being noticed.

This is especially true for children who have learned that adults are busy, unsure, or unaware of how to help.

Why this matters

Children learn from facing challenges, and they don’t need to be rescued from every one. But becoming capable also doesn’t require them to face challenges alone.

Support and independence are not opposites. When children experience adults as attentive and available, they are more likely to take healthy risks and to speak up when something feels hard.

In the next post, I will explore why children with limb differences often do not ask for help, even when they might benefit from it. This pattern begins long before they have the language to explain their experience.

For now, it is enough to begin noticing that “they’ll figure it out” is only part of the story.

Sometimes, what children need most is not another chance to adapt, but the reassurance that they do not have to do it alone.

Keep reading

👉 In Part 2: Why Children With Limb Differences Often Do Not Ask for Help, we explore how asking for help can be more complicated than it may appear, especially for children with limb differences.
👉 In  Part 3: Support, Independence, and the Space Between, we discuss what parents can actually do to help: how to talk with their child, when to step in, and how to support social and emotional well-being over time.

© 2026. Laura Faye Clubok, MS, OTR/L, On The Other Hand Therapy. All rights reserved.

The post Part 1: The Hidden Costs of “They’ll Figure It Out” appeared first on On The Other Hand.